My main impression from all this at the moment is that there is not psychological support for the patients and for their families. In my opinion, once diagnosed, one should have an access to a professional, who will explain basics about the disease, give some statistics, nutritional advice etc. It does not have to be a doctor. I know they are busy with their scientific stuff. It should be someone who is not going to be uncomfortable talking about the topic, some one who will not be rushing you out of the door because next patient is waiting, someone with an optimistic and caring nature, ideally a cancer survivor… Person who is willing to meet not only with the patient but also with relatives and friends. Do I ask too much? Too me, this seems common sense. People who pay taxes whole their lives should be entitled to the appropriate services. Not to be left to their own devices, internet searches and feeling of despair. I know it is going cost but so what? Why can’t we expect that? It is 21st century after all. I hope that one day it is going to be like that. Worldwide…
Update: 2019 – I have noticed that people are more willing to talk about problems like these however the support structure is still not there. Create your own support structure and don’t wait for the system to offer you one. Reach to groups and people who are willing to share and help.
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